Tired

Today I've had to take pain-killers. Which in it self isn't that bad. Naturally I would like to aviod it but since that's not a possibility in the winter time I'm living with it.  I have aches and pains in my right elbow and shoulder. Both my hips hurt like crazy and it feels like someone is jamming an iron pipe into it. I actually get surprised when there's a part of my body that doesn't hurt as it usually does.
It's one of those things that make me stop and become attentive.

But back to the pills... They make me loose my appetite and when I eat I can't eat very much (in comparison to what I usually eat) before getting nauseous and getting these gagging feelings. It's not one of thoses I've eaten too much feeling like on christmas but a regular "I'm gonna lose my lunch if I even smell food"-feelings.
So far it's made me lose 10,5 kilo (which is about 23 lbs/pounds). Not that losing weight is a problem - I actually need it. But it's just not a good way to get rid of the extra pounds. Berween the nausea and my allergies I'm wondering if I get the vitamins, minerals and proteins I need. I guess time will tell.
My problem is that I get so so tired. After a couple of hours I can sleep for 2 - 3 hours if I let myself. After a couple of hours I could sleep again. But that's just not a way to live life so I try not to give in to the fatigue I try to go outside for a walk or something every day so I can build up some energy and can keep awake.

I feel best outdoors because of the fresh, cold and clear air. I keeps me fresh, I feel less nauseous. It's just not very practical feeling best outside when it's winter and the snow drifts are between 23 and 71 inches...

I guess that it's just one of thoses things that AMC brings to your life - side effects.!

Welcome

This blog will primarily be used to blog about my life with Arthrogryposis Multiplex Congenita.
I've only just been diagnozed recently, at the age of 37, so I'm in a different situation than many others with the diagnosis in the sence that the usual precaution one takes in order to not deteriorate I haven't been able to take. It's put me in an "unknown" situation for both the doctors and I.

I still (after about six month of waiting) haven't been tested genetically to figure out which kind of AMC I have. But my hope is that I will be tested within the next month or so.

Instead of making one very long post about all of my problems I will tell about as I write posts and try to remember that no one - other than me - knows my physical situation.
I'm not exactly the one being worst of but I'm sure not the best either. Mostly due to other handicaps and the fact that I had my diagnosis late in life.  It suck but why feel down about somethin you can't do anything about or for that matter change. I maintain a positive outlook on life eventhough my situation has gotten quite a bit worse the last couple of years.

Not many Danes have an AMC diagnosis, which is why my blog is in English.
Some of the things you'll be able to read on the blog might sound strange but I'm sure that will be due to the differences between the Danish health care system and eg. the American.

Feel free to comment on my posts, give advice if you've been in a simular situation or have something else on your mind (naturally spam posts will be deleted) or just want to let me know that you follow my blog.

Helle Karina