Welcome

This blog will primarily be used to blog about my life with Arthrogryposis Multiplex Congenita.
I've only just been diagnozed recently, at the age of 37, so I'm in a different situation than many others with the diagnosis in the sence that the usual precaution one takes in order to not deteriorate I haven't been able to take. It's put me in an "unknown" situation for both the doctors and I.

I still (after about six month of waiting) haven't been tested genetically to figure out which kind of AMC I have. But my hope is that I will be tested within the next month or so.

Instead of making one very long post about all of my problems I will tell about as I write posts and try to remember that no one - other than me - knows my physical situation.
I'm not exactly the one being worst of but I'm sure not the best either. Mostly due to other handicaps and the fact that I had my diagnosis late in life.  It suck but why feel down about somethin you can't do anything about or for that matter change. I maintain a positive outlook on life eventhough my situation has gotten quite a bit worse the last couple of years.

Not many Danes have an AMC diagnosis, which is why my blog is in English.
Some of the things you'll be able to read on the blog might sound strange but I'm sure that will be due to the differences between the Danish health care system and eg. the American.

Feel free to comment on my posts, give advice if you've been in a simular situation or have something else on your mind (naturally spam posts will be deleted) or just want to let me know that you follow my blog.

Helle Karina